Schizophrenia: Three Moms in the Trenches
Voices from the place where schizophrenia and real life collide
Schizophrenia in the Family. How do we cope? How can we help? We each have adult sons with schizophrenia and have written acclaimed books about it. We say it like it is, to help families, practitioners and those with SMI (serious mental illness) feel less alone...and learn. Randye Kaye, Mindy Greiling, Miriam Feldman...and guests.
Two more riveting memoirs from fellow MRQs (Mothers who Refused to Quit) Mindy Greiling and Miriam Feldman affected me so much I had to get in touch – and this new podcast was born:
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What do we talk about?
Well, the truth. And we have guests, too. Some topics:
What’s Broken About the Mental Health system? – and how can it be fixed?
Early Detection
Conservatorship
The Voices
What Is Schizophrenia? What is it like?
Housing
Psychosis
Recovery
Family Loss and Needs
Where can you find it? Lots of places!
Audio: right here at randyekaye.com (see below) or wherever you get your podcasts. Apple/iTunes, Stitcher, Spotify, Google Podcasts, Amazon Music, or here on our host site buzzsprout.
Video:
our YouTube channel for this podcast Schizophrenia: three Moms in the Trenches
Randye’s youtube channel for Ben Behind his Voices speeches and interviews
Twitter: https://twitter.com/SZ3MomsTrenches
please comment, subscribe, and share!
Who Are We?
Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”)
Miriam Feldman – Artist, Mom, Author “He Came in With It”
Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)
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thank you! please comment, subscribe and share
Kimberly: (Facebook comment)
“This is one of the best podcasts I’ve heard on SMI and Schizophrenia. I have found so many resources and learned so much from the guest speakers and these three wonderful women advocates: Randye, Mindy, and Miriam. I am thankful for what you three ladies are doing. Through your podcast I have found hope and inspiration. I truly thank you for the work you are doing here.”
Jacqueline: (via Instagram comment)
” I feel so blessed to have the opportunity to tune into your podcasts. I’ve almost listened to all of them, I can’t get enough! You have impacted me greatly and I feel a part of my life has changed because of you. So, thank you!”
Susan –
A friend of a friend recommended your podcast and I can’t thank them enough for doing so. Have made my way through every episode and am so grateful for what you 3 do. I’ve shared w my Family to Family class and you have many more new listeners…Very grateful to you. Sending thanks and hope.
Christal Cori –
Thank you for this! My mother had schizophrenia, and it is great to have more conversation around this complex disease and its ripple effect.
Mary Troy
Thank you for your advocacy and for this outstanding podcast Randye! “It is what it is!”
Shelley Dillenberg, Facebook (bbhv reader group)
I listened. I feel like I personally know all 3 of you. Looking forward to the next one. I would love to join the discussion too..
Laura Baxter: (fb message)
Schizophrenia mom here. Thank you so much for sharing your story… God bless you hang in there.
Jody DeLeon:
I LOVED the first podcast and actually wanted to post it here . Is there a way to sign up for notifications with the podcast, so I can know when there is a new one ? I don’t want to miss it !
Jen Johnson
So critically REAL! Essential information and advice and incredible mothers!
Melanie Noble-Barket
♥️Thank you for providing these videos 😊 It’s just so helpful and comforting to hear your stories and experiences and to know I’m not alone in this nightmare. I also am thankful to learn about the books/authors and have read or recently ordered them all! I do wish there was an ability to have a Q&A, but I also understand the limitations.
Lynn Merritt Stewart –
Just yesterday, I listened to episode six on conservatorship. Of course, I’ve been loving every episode! Your three moms episodes have been fantastic! You’ve helped so many! Although my situation is different since I’m not dealing with schizophrenia you have also helped me! There are so many similarities with different types of mental illness! I really look forward to each new episode! Looking forward to episode seven!!
Insane: America's Criminal Treatment of Mental Illness (Ep 74)
Alisa Roth’s book Insane: America’s Criminal Treatment of Mental Illness, investigated the mental health crisis in our courts, jails, and prisons. Here she talks with 2 moms who have seen the system from the family point of view.
Guest:Alisa Roth,author :
Alisa Roth is a print and radio journalist who has reported extensively on the criminal justice system. Her first book, Insane: America’s Criminal Treatment of Mental Illness, investigated the mental health crisis in our courts, jails, and prisons. The New Yorker called it an “essential exposé” and The New York Times said it “is rife with sharp, brutal details that pull the reader beyond the realms of abstract policy debates.” She is former mental health correspondent for American Public Media.
1. Describe one example of the worst (e.g. solitary confinement or punishment for self harm) and the best (e.g. PACE, program for accelerated clinical effectiveness) you saw in your travels. How did we get here?
2. What is it like for the officers who work in prisons? What is in their training or lack of it that stands out? This isn’t what they signed up for…yet they are asked to do it.
3.Is it hard to identify those with mental illness at first?
4. What works , and what could help make it work better?
5. Could family involvement help? Do prisons request or get histories of patients?
6. We often hear that during deinstitutionalization we took people out of institutions and the mirror image number people are now in jails and prisons. In “Insane,” you contend that the story is far more complicated. Please explain.
7. You note that race, poverty, and mental illness overlap in the criminal justice system, but of all the gross imbalances of our current approach to criminal justice, perhaps no group has been hurt as much as people with mental illness. Why is that your conclusion?
8. Why is society more willing to spend money on jails and prisons (e.g., mental health units) than regular mental health care?
9. You write that about 80 percent of people with mental illness in the criminal justice system have a substance use disorder in addition to the mental illness. Have we made any progress in treating these illnesses in tandem?
10. You write that 30 % of those with serious mental illness receive no treatment at all. What kinds of mental health care do we need more of?
11. You note that in many states, much of the inventory of beds is reserved for forensic patients, at the expense of civilian ones, thus sending more people with mental illness to jail and prison. Do we need more inpatient care and long-term care?
12. What should a better mental health care system look like?
13. You write that since the changes of the 1970s, many cite the barriers to involuntary commitment as one of the reasons for the increased criminalization of mental illness. Do you also subscribe to that theory?
14. Why is enrollment in mental health courts so limited, making them, as you write, unable to make a dent in the number of people with mental illness who end up in the criminal court system.
15. Are more states creating crisis centers like the one in San Antonio? Judge Steve Leifman, Miami-Dade, Florida has been able to close a jail due to his jail diversion program. Is this catching on around the country? Why or why not?
16. What was the response to your book? Any changes in the five years since it came out?
17. We understand you are working on a new book. Can you share what it’s about?
Links:
AlisaRoth on twitter/X - @alisa_roth
Website: http://alisaroth.com/